On 11 January 2022, the European Commission and MHRA approved Kaftrio for eligible children aged 6-11 in England, Scotland, Wales and Northern Ireland.
See CF trust update for more information. We will be in touch with those eligible to arrange all tests needed to prescribe and discuss with you what this means for you
We are a team of Paediatricians working within the Exeter Paediatric CF multidisciplinary team: Dr Beth Enderby, Dr Emily Bell and Dr Rachel Elderkin. Dr Patrick Oades will be sadly leaving us in December to enjoy his retirement after many years of dedicated service.
Dr Beth Enderby was appointed as a General Paediatric Consultant with a special interest in Respiratory Paediatrics and CF in 2011. She is our lead for Paediatric CF services in Exeter and Paediatric lead for the CF trust research trials programme.
Dr Patrick Oades was appointed as General Paediatric Consultant with a special interest in Respiratory Paediatrics and Cystic Fibrosis in 1995. He has worked hard to establish and develop the Exeter CF Centre and his active research ethic has supported our selection as an accredited CF clinical trials network site with the aim of improving the care of young people with CF.
Dr Rachel Elderkin was appointed as a Staff and Associate Specialist grade Paediatrician in 2001 and has been working within the CF team since then. She is particularly involved in supporting the transition process to adult services and team website development.
Dr Emily Bell will be joining us in 2022, having been appointed as General Paediatric Consultant with an interest in Respiratory Paediatrics and Cystic Fibrosis, and has been working alongside the team over the last few months.
Between us we have a depth of experience in CF care . Our aim is to provide excellent specialist care to enable children and young people with CF to maintain the best possible health and participate as fully as possible in normal activities and aspirations including family life, school, Further education, work and leisure.
Dr Cressida Auckland is our Microbiology Consultant lead supporting the complex microbiological needs associated with CF. As a team we aim to comply with strict laboratory standards and CF trust Standards of Care. We hold frequent meetings together to discuss how best to test for and treat CF bugs. There is a local research interest into the CF microbiome.
We have 2 Specialist CF nurses working within the Exeter Paediatric team, Jenny Tollit (Lead Specialist nurse) and Hannah Pike. Jenny has recently joined Hannah in the CF nursing team from Great Ormond Street following Liz Lanes departure.
The CF specialist nursing service provides support to children and families about all aspects of Cystic Fibrosis both in outpatient clinics, in the community and on the ward during any admissions to hospital.
This support includes easing transition to your child’s nursery, school or college to share education about CF and ensure your child receives the right advice and support in each setting.
Our role is to ensure that your child receives the highest level of nursing care. This includes providing specific advice, support and education tailored to your family’s needs. We perform any specific nursing procedures when required such as care of intravenous lines, gastrostomy care, checking drug levels etc depending on your childs needs.
As Specialist Nurses we are your first point of contact if you have any concerns or worries.
Our team covers both adults and children and comprises of lead physiotherapist, Alice Day, Specialist Physiotherapists; Jayne Trott, Helen Speedy, Cory Dowdell, and an Exercise Therapist, Tom Kent. We also have a rotational junior physiotherapist working within the team. Between them they offer a range of expertise to meet your or your child’s needs. Alice and Jayne have recently coauthored the Association of chartered physiotherapists (ACPCF) CF Physio guidelines 2020 ensuring excellent national up to date CF care standards. The team actively contribute to CF publications to continue to drive forward CF physio standards of care. (see home page, publications)
Helen is based in North Devon and provides our service within the North Devon CF team. Tom is a full time exercise therapist who completes the exercise tests and offers support with individual exercise programmes.
Please see our Paediatric CF Physiotherapy Services section for further information.
Our CF dieticians Marie Barret (lead) and Martina Bartus support care for all ages from infancy to adulthood.
Marie and Martina are available for you to support all aspects of CF nutritional care from infant feeding and weaning through to more specialist nutritional support advice through teenage and adult life. They will support your multidisciplinary reviews in outpatients, in the community and during hospital stays. They work closely with our diabetic teams for those with CF Diabetes to optimise nutrition.
Please see our Nutritional Support section for further information and access to CF trust resources.
Psychological care is an essential part of any effective treatment plan for a life limiting medical condition such as Cystic Fibrosis.
Our Clinical Psychologist Holly Jones will be available to meet with you informally in clinic and to arrange more formal sessions as and when needed.
Please see our Psychology – Paediatric section for further information.
We have a dedicated CF Pharmacist working with us in our team here in Exeter.
They are able to work with us to ensure the best combinations of medicines for your needs, help us to introduce new CF drugs as they become available and to help support delivery of home care services as you need them.
We have a lot of support behind the scenes to ensure a smooth running of the service including secretarial support, data clerks and research nurses amongst others.
We have close links to many other services within the hospital:
From Paediatric Endocrinology for support with CF related Diabetes, through to ENT, Gastroenterology, General Surgery, Interventional radiology and Fertility services amongst others.