Pharmacy update: we have switched Homecare high cost drug provision from Lloyds  to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients  prescriptions move across. Apologies for any inconvenience during this transition.

If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact  Lloyds first (Tel 0345 2636 123) followed by  Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems  please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.

We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have  3-4 weeks of medication left to avoid being left short.

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Meet The Exeter Paediatric Team

Medical Team


We are a team of Paediatricians working within the Exeter Paediatric CF multidisciplinary team: Dr Beth Enderby, Dr Emily Bell and Dr Rachel Elderkin. Dr Patrick Oades sadly left the team in December to enjoy his retirement after many years of dedicated service.

Dr Beth Enderby was appointed as a General Paediatric Consultant with a special interest in Respiratory Paediatrics and CF in 2011. She is our lead for Paediatric CF services in Exeter and Paediatric lead for the CF trust research trials programme.

Dr Emily Bell  recently joined us in 2022, as a General Paediatric Consultant with an interest in Respiratory Paediatrics and Cystic Fibrosis and will be meeting many of you shortly. Dr Bell trained in the Southwest and has worked alongside the team prior to her appointment.

Dr Rachel Elderkin was appointed as a Staff and Associate Specialist grade Paediatrician in 2001 and has been working within the CF team since then. She is particularly involved in supporting the transition process to adult services and team website development.

Between us we have a depth of experience in CF care . Our aim is to provide excellent specialist care to enable children and young people with CF to maintain the best possible health and participate as fully as possible in normal activities and aspirations including family life, school, Further education, work and leisure.

 

Microbiology Services


Dr Cressida Auckland is our Microbiology Consultant lead supporting the complex microbiological needs associated with CF. As a team we aim to comply with strict laboratory standards and CF trust Standards of Care. We hold frequent meetings together to discuss how best to test for and treat CF bugs. There is a local research interest into the CF microbiome.

 

CF Specialist Nurses


We have a Specialist CF nurse team working within the Exeter Paediatric team. Jenny Tollit is our Lead CF Specialist nurse and an application is open for an additional team member.  Jenny has recently joined the CF nursing team from Great Ormond Street. Hannah Pike has recently moved on to pastures new and we wish her all the best.

The CF specialist nursing service provides support to children and families about all aspects of Cystic Fibrosis both in outpatient clinics, in the community and on the ward during any admissions to hospital.

This support includes easing transition to your child’s nursery, school or college to share education about CF and ensure your child receives the right advice and support in each setting.

Our role is to ensure that your child receives the highest level of CF nursing care. This includes providing specific advice, support and education tailored to your family’s needs. We perform any specific nursing procedures when required  such as care of intravenous lines, gastrostomy care, checking drug levels etc depending on your childs needs.

As Specialist Nurses we are your first point of contact if you have any concerns or worries.

 

Physiotherapy Team


Our team covers both adults and children and comprises of lead physiotherapist, Alice Day and Specialist Physiotherapists; Jayne Trott, Helen Speedy ( North Devon), Adam Caunter and an Exercise Therapist, Tom Kent. We also have a rotational junior physiotherapist working within the team. Between them they offer a range of expertise to meet your or your child’s needs. Alice and Jayne have recently coauthored the Association of chartered physiotherapists (ACPCF) CF Physio guidelines 2020 ensuring excellent national up to date CF care standards. The team actively contribute to CF publications to continue to drive forward CF physio standards of care. (see home page, publications)

Helen is based in North Devon and provides our service within the North Devon CF team. Tom is a full time exercise therapist who completes the exercise tests and offers support with individual exercise programmes.

Please see our Paediatric CF Physiotherapy Services section for further information.

 

Dietician Team


Our CF dietician Marie Barret (lead)  supports care for all ages from infancy to adulthood. We have said goodbye to Martina sadly but will look forward to welcoming a new team member shortly.

Our Dieticians are  available for you to support all aspects of  CF nutritional care from infant feeding and weaning through to more specialist nutritional support advice through teenage and adult life. They will support your multidisciplinary reviews in outpatients, in the community and during hospital stays. They work closely with our diabetic teams for those with CF Diabetes to optimise nutrition.

Please see our Nutritional Support section for further information and access to CF trust resources.

 

Psychologists


Psychological care is an essential part of any effective treatment plan for a life limiting medical condition such as Cystic Fibrosis. 

Our Clinical Psychologist Holly Jones will be available to meet with you informally in clinic and to arrange more formal sessions as and when needed.

Please see our Psychology – Paediatric section for further information.

 

CF Pharmacist


We have a dedicated team of CF Pharmacists working with us in our team here in Exeter.

They are able to work with us to ensure the best combinations of medicines for your needs, help us to introduce new CF drugs as they become available and to help support delivery of home care services as you need them. ​

 

Managerial and Administrative support


We have a lot of support behind the scenes to ensure a smooth running of the service including Cluster Managers, secretarial support, data clerks and research nurses amongst others.

Other Specialities


We have close links to many other services within the hospital:

From Paediatric Endocrinology for support with CF related Diabetes, through to ENT, Gastroenterology, General Surgery, Interventional radiology and Fertility services amongst others.