Pharmacy update: we have switched Homecare high cost drug provision from Lloyds  to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients  prescriptions move across. Apologies for any inconvenience during this transition.

If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact  Lloyds first (Tel 0345 2636 123) followed by  Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems  please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.

We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have  3-4 weeks of medication left to avoid being left short.

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Travelling with CF?

We should all be able to enjoy the freedom of travelling, however for those with cystic fibrosis (CF) this can be more challenging. Good preparation and a little guidance will help reduce these challenges and optimise health to prevent hiccups where possible.

The linked  travel guide is a fun and useful resource, a fabulous creation by our own adult CF Nurse Millie – we have also linked access to the CF Trust resources. Please see sidebar (which may be below if viewing on a smaller screen).

Please discuss your travel plans with your CF team so we can ensure your health is optimal and we can plan around your trip, and indeed advise if travel is not recommended at this time for any reason. Supportive travel letters are available to avoid problems in customs with your medication. We can also identify recognised CF centres near your destination as a safety net. Always take sufficient medication and an up to date letter summarising your care.

We can not recommend any particular travel insurance companies as things change but 2 options to try include: www.insurancewith.com/cysticfibrosis and www.freespirittravelinsurance.com