On 11 January 2022, the European Commission and MHRA approved Kaftrio for eligible children aged 6-11 in England, Scotland, Wales and Northern Ireland.

See CF trust update for more information. We will be in touch with those eligible to arrange all tests needed to prescribe and discuss with you what this means for you

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Travelling with CF?

We should all be able to enjoy the freedom of travelling, however for those with cystic fibrosis (CF) this can be more challenging. Good preparation and a little guidance will help reduce these challenges and optimise health to prevent hiccups where possible.

The linked  travel guide is a fun and useful resource, a fabulous creation by our own adult CF Nurse Millie – we have also linked access to the CF Trust resources. Please see sidebar (which may be below if viewing on a smaller screen).

Please discuss your travel plans with your CF team so we can ensure your health is optimal and we can plan around your trip, and indeed advise if travel is not recommended at this time for any reason. Supportive travel letters are available to avoid problems in customs with your medication. We can also identify recognised CF centres near your destination as a safety net. Always take sufficient medication and an up to date letter summarising your care.

We can not recommend any particular travel insurance companies as things change but 2 options to try include: www.insurancewith.com/cysticfibrosis and www.freespirittravelinsurance.com