Adult CF Physiotherapy Services
The aims of the Physiotherapy team is to support you with CF to enable you to carry out physiotherapy treatments in line with National CF standards of care.
Pharmacy update: we have switched Homecare high cost drug provision from Lloyds to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients prescriptions move across. Apologies for any inconvenience during this transition.
If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact Lloyds first (Tel 0345 2636 123) followed by Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.
We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have 3-4 weeks of medication left to avoid being left short.
The aims of the Physiotherapy team is to support you with CF to enable you to carry out physiotherapy treatments in line with National CF standards of care.
Our team covers both young people and adults and comprises of a Clinical Lead physiotherapist, Jayne Trott, Specialist Physiotherapists; Helen Speedy (North Devon), Alice Day, Adam Caunter and an Exercise Therapist, Tom Kent. We also have one rotational junior physiotherapist working with the team.
Helen is based in NDDH and continues to provide our service within the North Devon Paediatric CF team. Tom is a full time exercise therapist who completes the exercise tests and offers support with individual exercise programmes.
Physiotherapy is made up of a number of components and some aspects can start from the time of diagnosis. Other components can start at different times and will be reviewed regularly at clinic appointments depending on the your needs.
The main components of physiotherapy for CF are:
You will be offered a review by a physiotherapist at clinic who will:
Things to remember when you come to the clinic:
Virtual Clinic
As a new service introduced during shielding many appointments are now being offered as virtual clinic appointments over a video link via the platform Attend Anywhere. The URL for your video consultation is URL https://nhs.vc/RDE-CysticF
Things to prepare prior to your physio appointment;
Home Visits
We offer home visits to support patients during an exacerbation of their symptoms or when new treatments are being introducing.
Throughout the duration of the admission you will be seen by a physiotherapist to carry out:
Please bring all airway clearance equipment, nebuliser equipment and spirometry with you on admission
You will be provided with the correct nebuliser or airway clearance device if needed, together with a set number of consumables each year. It is your responsibility where possible to keep the equipment in good condition and free from damage.
Please see resources section for videos demonstrating how to assemble your nebuliser device
Should you experience a problem with any of the devices please contact the physiotherapy team for advice on 07881787584 or email: rde-tr.exetercf@nhs.net and bring to your next appointment.
We have lots of resources to help you support your physiotherapy. If you can’t see what you want in the resources please ask the team. If you would prefer to receive in booklet form please ask.
How to set up your ineb
How to set up your eflow video
How to backwash your eflow aerosol head video
How to set up your Pari sprint video
How to set up your nebuliser for antibiotic therapy-video
How to take a home spirometry test with Nuvoair
How to do a cough swab