Pharmacy update: we have switched Homecare high cost drug provision from Lloyds to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients prescriptions move across. Apologies for any inconvenience during this transition.
If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact Lloyds first (Tel 0345 2636 123) followed by Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.
We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have 3-4 weeks of medication left to avoid being left short.
We currently are a team of 4 Adult Physicians working within the Exeter CF multidisciplinary team:
Dr Lee Dobson, Dr Nick Withers, Dr Phil Mitchelmore and Dr Chris Sheldon.
Dr Withers was appointed as Consultant in Respiratory Medicine and CF in 2000. He is currently lead for adult CF services in Exeter and adult lead for the CF Trust research trials programme.
Dr Sheldon is the most longstanding member of the team appointed as Consultant in Respiratory medicine and CF. He has worked hard to establish and develop the Exeter CF centre and his active research ethic has supported our selection as a CF clinical trials network site.
Dr Dobson completed his MD thesis in CF related Diabetes in 2003. He was appointed as Consultant in Respiratory medicine at Torbay Hospital in 2003 and has subsequently moved to join the Exeter team in 2017.
Dr Mitchelmore was appointed as a Consultant in 2020. He completed a PhD in Exeter investigating bacteria in the lungs of people with CF and bronchiectasis in 2018.
Between us we have a depth of experience in CF care . Our aim is to provide excellent specialist care to enable young people and adults with CF to maintain the best possible health and participate as fully as possible in normal activities and aspirations including family life, Further education, work and leisure. We have a well established clinical research program and Exeter is an accredited site for the CF Clinical trials network helping to promote on going improvements in health care in CF.
Dr Cressida Aukland is our Microbiology Consultant lead supporting the complex microbiological needs associated with CF. We endeavour to comply with laboratory standards and CF trust microbiological standards of care. There is local research interest into the CF micro biome.
The CF specialist nursing service has a key role in supporting young people and adults with Cystic Fibrosis. Our role allows us to be here for you in all aspects of your care through outpatient clinics, in the community and on the ward during any admissions to hospital.
As Specialist nurses we are your first point of call for all clinical questions or concerns. We will link with the wider multidisciplinary team as needed to ensure you get the right advice.
We aim to ensure that you receive the highest level of CF nursing care. Our role is wide and varies from specialist nursing care around practical procedures, such as supporting you with care of intravenous lines and home IV antibiotic administration, gastrostomy care and arranging blood tests , through to more holistic needs such as navigating access to further education and employment, signposting you to appropriate financial support, and coordinating access to other services as needed to ensure you receive the right advice and support in each setting.
If you have any CF concerns or worries, please contact us.
Our team covers both adults and children and comprises of lead physiotherapist, Jayne Trott, and four specialist physiotherapists. Between them they have a vast range of expertese to support your needs. Alice and Jayne have coauthored the 2020 Association of Chartered Physiotherapists (ACPCF) CF Physio guidelines improving and updating CF care nationwide.
Helen Speedy is based in North Devon and provides your Outpatient and Community support in that area.
We also have a full time Exercise Therapist, Tom, who completes your exercise tests and offers support with individual exercise programmes.
Please see our Adult CF Physiotherapy Services section for further information.
Our CF dietician service supports care for all ages from infancy to adulthood. Our experienced team lead is Marie Barret with plans for a new colleague to join shortly. We have had to say goodbye to Martina recently off to pastures new!
As a service we are available for you to support all aspects of CF nutritional care from infant feeding and weaning through to more specialist nutritional support advice through teenage and adult life. We will be part of your multidisciplinary reviews in outpatients, in the community and during hospital stays. We work closely with our diabetic teams for those with CF Diabetes to optimise nutrition.
Please see our Nutritional Support section for further information and access to CF trust resources.
Psychological care is an essential part of any effective treatment plan for a life limiting medical condition such as Cystic Fibrosis.
Many individuals with Cystic Fibrosis develop effective coping skills to manage the physical symptoms, treatment burden, psychological and social factors that can have a negative impact on quality of life. At other times, these demands can feel more challenging, and higher levels of anxiety and depression are common in individuals with Cystic Fibrosis and their caregivers. This can be just as damaging to a person’s quality of life as the physical effects of the illness.
Please see our Psychology in the Adult CF Team section for further information.
We have a dedicated CF Pharmacist working with us in our team here in Exeter.
They are able to work with us to ensure the best combinations of medicines for your needs, help us to introduce new CF drugs as they become available and to help support delivery of home care services as you need them.
We have a lot of support behind the scenes to ensure a smooth running of the service including secretarial support, data clerks and research nurses amongst others, freeing up the team to focus on delivering high quality clinical care.
We have close links to many other services within the hospital:
From Paediatiric Endocrinology for support with CF related Diabetes, through to ENT, General Surgery, Intervential radiology and Fertility services amongst others.