Pharmacy update: we have switched Homecare high cost drug provision from Lloyds  to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients  prescriptions move across. Apologies for any inconvenience during this transition.

If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact  Lloyds first (Tel 0345 2636 123) followed by  Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems  please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.

We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have  3-4 weeks of medication left to avoid being left short.

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Changing Schools


Children usually move from primary to secondary school when they are 11 years old. Schools may expect children to become more independent with their treatment as well as in other matters, for example, to take care of their own Creon. Children will still need to attend outpatients for regular review every 6-8 weeks. If children need to spend time in hospital, they may be able to have work sent in from their own school or attend the hospital school. New treatments may be added to keep the children well and to maintain lung function and growth which need to be factored into the school day .

Key useful advice

  • Exercise remains a very important part of keeping well.
  • Discuss the change of schools with the team. The CF Nurses will be able to help with this transition
  • Try to encourage children to start to take an interest in their treatments
  • It is important that children have a few friends and staff members who know about their CF – we can help you with how to share any news if you are not sure whilst helping maintain confidentiality
  • Children with CF should be able to participate in usual school activities –please discuss any queries/ concerns with your CF team if planning activities that you are worried may pose an infection risk to them

Links & Resources


CF Trust Secondary School