Pharmacy update: we have switched Homecare high cost drug provision from Lloyds  to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients  prescriptions move across. Apologies for any inconvenience during this transition.

If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact  Lloyds first (Tel 0345 2636 123) followed by  Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems  please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.

We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have  3-4 weeks of medication left to avoid being left short.

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Starting School


Starting school is an exciting but also daunting time for our patients and families. It can mean change in routine. Additional communication with school many be needed. Your team is here to support you. Nurses, Dietitians and Physiotherapists will be around to provide input and training where needed at home or at school

Key useful advice

  • Talk to your team about the school your child is starting and we can get in contact with them to arrange a visit.
  • Encourage an active lifestyle- think about walking to school.
  • Get involved in activities in and outside of school.
  • Get in contact with us for any assistance needed in regards to changes in your daily routine.
  • Expect your child to be tired and allow room and time for this.
  • Alert the team to any issues arising that prevent your child from accessing their CF needs in school as we may be able to work with school to resolve these.s

Links & Resources


School and Cystic Fibrosis. A guide for teachers and parents

This guide aims to provide information about all aspects of Cystic Fibrosis (CF) and school