Pharmacy update: we have switched Homecare high cost drug provision from Lloyds  to Sciensus. This will involve a transition period over the next few months where you may still have outstanding deliveries from Lloyds whilst all patients  prescriptions move across. Apologies for any inconvenience during this transition.

If you have not had a delivery from Sciensus yet, you will unfortunately not know which company holds your current prescription. So for the next few months when arranging a delivery we ask that you contact  Lloyds first (Tel 0345 2636 123) followed by  Sciensus if Lloyds unable to help (Tel 0333 103 9499). If you experience any problems  please then contact your clinical team. Once you receive a delivery from Sciensus you will not need to contact Lloyds again.

We have experienced delays due to staffing shortages at both Homecare companies, so please plan your next delivery when you still have  3-4 weeks of medication left to avoid being left short.

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Transitioning to Adult Services

Transition is the purposeful planned process for young people with chronic conditions to move from child centered to adult orientated health care. Adult health care services will be unfamiliar to you as yet but your team will support you in becoming more responsible for your own care and treatments. With this you will learn the skills you need to manage adult life with CF and get the most from activities such as employment, going away to college, or living with a partner.

We will have been working with you to prepare for your transition by increasing your knowledge and understanding of your CF care and by encouraging you to become increasingly involved in decisions about management. We hope that by doing so you have already attended some adolescent clinics and are familiar with the adult clinic environment so it is not new to you.

Hopefully you have met some of the adult team before transfer of care there are photos and names available on this site to remind you and do not be afraid to ask. We are fortunate to provide both Paediatric and Adult services on the same site so some members of your team will stay with you and be familiar faces.

Mostly you will find the service runs very similarly to what you are used to and the change will feel right for you.

Differences you may notice:

  • You will be the focus of the consultation and your decisions will be respected – however you are welcome to invite family or friends to any consultation for support if you need it.
  • Letters and telephone calls will be directed to you rather than your parents.
  • Any hospital admissions will be to the adult wards – check with staff about differences in visiting times.
  • When you are well, more of your consultations will be held virtually to allow you to access care whilst attending work/ University etc but with face to face appointments available when needed