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CF & Me

Would you like help to understand more about your CF? Or do you find it hard to explain your CF to your friends?

Click on ‘What is CF’ or ‘Getting Nosey about CF’ (for slightly younger children) to see if these can help! Getting Nosey is for younger children and What is CF is aimed at older young people and really helpful for answering questions to friends

Struggling to access these resources? Try this easy read CF trust document with lots of pictures!


Calling all young people!

The CF Trust Youth Advisory Group (YAG) is a way for young people (aged 14-25) living with CF to influence work at the CF Trust and ensure that the voices of young people with CF are heard. They hold monthly online hangouts and it’s a great way to meet others and get involved in projects. 

  Check them out on Twitter or Instagram @CFTrustYouth 

The Cystic Fibrosis Trust runs a Youth Programme ‘Building Brighter Futures’, which offers a range of free online events for children with CF and their siblings aged 6-18 years.
The programme provides a safe space for children to come together online, meet others with CF, and have fun through taking part in events and workshops such as games nights, stand-up comedy, creative writing, arts and crafts, baking and movie nights. The programme has been running since 2017, and we have been privileged to have been funded by BBC Children in Need for the past six years.
Check out their You tube link below for more information!:

Building Brighter Futures – YouTube


The CF Trust also runs an active youth advisory group for 14-25 year olds with CF. The CF trust are really keen to ensure young people with CF have a voice in shaping the Trust’s work, and the group has worked on a range of interesting projects over the past couple of years including a Kaftrio survey, an A-Z of exercise, and is currently producing a glossary of CF terminology. Let us know if you have found other resources that you think may help others – they would love to hear from you! See the link below:

CF Youth programme | Cystic Fibrosis Trust

Links & Resources